April 18, 2014
Yesterday we took Buddy to the
specialist. After looking at the x-ray we brought with us the PA said that the
bones weren’t fused. She agreed that the shape of his head was odd and
suggested that it was due to him sleeping on his back and shifting the bones
requiring his brain to grow out the other way—I thought this was a dumb explanation
as I know how he sleeps and he does not sleep with his head at the angle required
for such a possibility. To be on the safe side in case there was a different
reason she said she wanted him to have a CT Scan. A while later a nurse
returned to the exam room where we were waiting to say that there weren’t any
open slots in CT but that they would work us in. The PA had earlier indicated that
it would be best if Buddy slept for it as he was super active. If he wouldn’t
sleep or hold still we would have to return another day to have him sedated.
We got upstairs and checked him in
about a quarter to 1. Though he was very tired by this time we weren’t sure he
would allow himself to sleep. He looked around a lot for a while before finally
laying his head on my shoulder and falling asleep. Hubby checked with the desk
to see if they had any idea how long it would be as he had fallen asleep. They weren’t
sure but said that we should just let him sleep. About 2 minutes later they called his name. We
walked out the waiting room door and around a long half-circle hallway to the
room for the scan. He stayed asleep. They had me lay him down on the machine
and then they wrapped his arms and weighted them down. He stayed asleep. His
head was turned to the side so they carefully adjusted it using the sheet and
some small pieces of foam. He stayed asleep. Hubby and I left the room. About 2
minutes later they called us back in to get Buddy as they were done with the scan—imagine
if they had had to sedate him for that??. I picked him up and followed the tech
out the door and down the hall. A minute later we passed an open door where a
baby was crying. Buddy woke up!! He looked around like he was asking why he
wasn’t still asleep. We returned downstairs to the neurosurgery clinic waiting
area for a while before being called back to another exam room and waiting
there for almost an hour. Buddy didn’t sleep again until after we left the
hospital. My Hubby later told me that he had been praying Buddy would sleep so that
the scan could be done. He had slept just long enough for them to get the scans
that they needed!! J
While we were waiting we fed Buddy
and tried to keep him entertained. There were several times throughout the day
that we had him giggling and laughing so hard! It was so wonderful to hear him
laugh! At one point Hubby took out his ipod touch and took a video of Buddy.
Then he showed Buddy the video. Buddy thought it was really neat. When he
started the video Hubby told Buddy to smile for Daddy, so every time the video
was played Buddy would turn and smile at Daddy at that part! J
Eventually the PA came back and
reviewed the CT scan with us. The CT confirmed that the bones weren’t fused;
she said that that “is not the concern” and went on to show us that Buddy’s
brain and all the fluid is good. So, that means that he doesn’t have a tumor or
anything like that—the only other thing we knew of that would cause his head to
be malformed. I hadn’t really thought too much about this possibility, but
Hubby had been praying and trying not to worry about this. She said that she
wanted one of the surgeons to review her findings and she would be back.
She returned with the Head of the
Pediatric Surgery Department—Dr. M. He introduced himself and then asked a few
questions about my pregnancy with Buddy. We told him that Buddy had been transverse
for a while. He then asked me some questions about my medical history and asked
to see a picture of Princess. Then he went over the CT with us and told us what
had probably concerned the radiologist here about Buddy’s initial x-rays. In
addition to the shape of Buddy’s head being slightly off, his eye sockets aren’t
completely round. They are slightly up tilted at the outside corners. Also, the
bridge of his nose is flat. Dr. M called this a saddle bridge. He said that the
flattened bridge pushed his forehead into more prominence and changed the shape
of his head. He believed that it was caused by Buddy being transverse, most
likely with his face tilted up and pressed into my side (we don’t know his
exact position as my Dr. didn’t do an ultrasound during that time.), combined
with the fact that I have hypothyroidism. He said that this can also cause a
saddle bridge. Apparently, being on too much, or not enough, or not any, medication
when you need it, can cause this condition. There isn’t anything I could have
done or not done to cause this it just happens and they don’t know why. (Princess
doesn’t have it.)
Dr. M said that he diagnosed the
cause by looking at me. He said that he always likes to meet the patient and
parents because just looking at films doesn’t tell him the whole story. We
wonder a bit what we would have been told if he hadn’t come to talk to us, but
aren’t dwelling on it. He told us that the tipoff for him was my face. I have a
bit of facial hair that I try to keep removed but sometimes forget. That
morning as we pulled out of the drive I remembered that I hadn’t taken care of
it. Hubby told me not to worry about it that it wasn’t that noticeable. IF I
had taken care of it, Dr. M might have still noticed but who knows?? Anyway, it
helped to figure things out. J
We are looking into a couple things
related to my hypothyroidism just to be on the safe side, but it sounds like if
Dr. M is correct, then we don’t need to do anything and Buddy will be just
fine!! J This is such a huge relief and answer to
prayer. We prayed for correct and clear information—we believe we have
it. We prayed for peace and joy—we have it.
When we got home my mother-in-law
shared that she had been praying some verses for us that had been special to
her back when my Hubby was a baby and had almost died. She said that all her
prayers for Buddy and us had been answered. Here are the verses:
Psalm 34
King James Version (KJV)
4 I sought the Lord, and he heard me, and delivered me from all my
fears. 19 Many
are the afflictions of the righteous: but the Lord delivereth
him out of them all. 22 The Lord redeemeth
the soul of his servants: and none of them that trust in him shall be desolate.
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